Sunday, March 11, 2012

2 Years

Today was the two year anniversary of the most devastating day of our lives. The day Avery's heartbeat could not be found. The day we found out she slipped away in my womb. The day we were told I'd have to deliver her. Two years. How has it been so long and still feel so recent that I can remember each and every detail? It has changed our lives. It's changed who we are inside and out. It's changed the way things affects us. It's changed the way we fit in with the world. It's changed everything.

It feels worse this year knowing that the only daughter I'll ever get to have, I lost. On Avery's birthday last year, I was 11 weeks pregnant with Jude, praying and believing that losing Avery would be the biggest pain we'd ever know and that everything would be okay from then on. That was before I knew that Jude would have to be our last. Before I knew Avery would be our only daughter. Ever. So even though another year is between those raw early days and now, there is a new element to grieve everyday. My only daughter is dead. And I've lost a lifetime of joy with her.

I often wonder what people think. Do they roll their eyes or do they try to empathize? Do they think it shouldn't matter or do they understand? I really wouldn't want to know. It would kill me if the people I care about could ever shrug off something so sacred to me. Avery is my daughter. It doesn't matter if she was here for one day, one year, one month, or one lifetime. She was here.

Tomorrow is the anniversary of when I went into the hospital for induction to have Avery. And finally, Tuesday, the 13th is Avery's 2nd birthday. I can't believe she's been gone for two years. I can't believe this has been our life for two years.  I don't know how that much time has passed. How did we make it this far?

I miss her. I miss her so much.



Saturday, February 4, 2012

Avery Bear

A week ago, on January 28th, I received a very special surprise in my mailbox. My Avery Bear arrived.




My special bear was made by a lovely organization called Molly Bears. They make beautiful weighted teddy bears for bereaved parents.  I was only on the waiting list for a short time, so I was pleasantly shocked to receive mine so soon.

I was even less prepared for how emotional it would be for me when I picked up the soft fluffy clump out of the box. The small pink bear weighs 8.2oz, just as much as my Avery weighed. Feeling my baby girl's weight in my hands once again released a sudden flood of emotions. I don't know if I can explain it, but the second I held it, I felt like it had only been yesterday that I'd felt Avery in my hands. The weight of the bear felt so familiar. I bawled for my daughter like I haven't in quite a while. I felt closer to her. She felt less distant. Less in the past. I couldn't believe that a small weighted teddy bear could do that for me. To snuggle that stuffed animal was so comforting. I am so grateful to have it. It will forever be a huge part of our family. A special symbol of our precious little girl.


My precious boy with his big sister's bear.



Thursday, December 22, 2011

Meeting Kenny's Mom

When I was thrown into this journey, almost two years ago (wow, how has it been that long already?!) I never dreamed I would form such special relationships with other bereaved mothers online. Ones I had never met but bonded with on such an intimate level. I read their blogs and feel like I wrote them myself. In so many ways, we are all the same. And we take comfort in this. It makes us feel less alone in this world where horrible things happen and they have no prejudice.

For some reason, until recently, it never occurred to me that I could actually meet in real life any of these amazing and strong women whom I feel like I already know. But today, it actually happened. I met Julie. :) Julie lost her sweet Kenny last May when she was 25 weeks along, just like me. She and her husband came down to visit some family who happens to live just twenty minutes away from me. We arranged to meet and had lunch today at Chili's, Julie, Daniel, Jude, and me.

It was so great to sit and talk of our babies together and we both felt the same way about so many things. It's so easy to feel like a freak of nature when your body fails you and the only people you can relate to are not a part of your everyday immediate life. But to be face to face with someone who shares your same pain... There's some comfort in that.

It's amazing how universal so many of the emotions of baby loss are. It is such a personal devastation, but it can so easily be shared with strangers. Strangers that become friends.

I am so grateful that I got to meet Julie today. It was like catching up with an old friend. I hope it's not the last time we cross paths or the last time I get to meet a fellow baby loss mom!

Tuesday, November 8, 2011

Brother and sister

There's a big piece of my heart that has been mended since Jude was born. A Rainbow Baby does bring so much healing. My arms are no longer empty. My house doesn't lack the sounds of a little one. There are finally pacifiers, burp cloths, and little socks scattered in random places... These things and so many more that I have been dreaming of are finally a reality for us. But do not be mistaken. I still miss her.

I miss Avery everyday. I look at Jude's little face and I wonder if he looks like she would have. I hear his cry and his little sounds and wonder what hers would have sounded like. I see Jude's beautiful blue eyes and wonder what it would have been like to see Avery looking back at me. I cuddle Jude, all warm and alive, and I wonder what it would have been like to cuddle Avery with the absence of coldness and death. I wonder what it would be like to see Avery play with Jude, like a sister and brother play. Would she be helpful or jealous? Would she be gentle or rough with him? I know they would have grown up to be best friends, just like I am with my brothers.

I'll always be left to wonder, because Avery still isn't here. And it's still hard without her. Jude doesn't erase or replace her. He doesn't fill her void. He just distracts us from it. I praise God for the gift of Jude. He's amazing and beautiful. Such a precious little brother.

Sadly enough, something I was looking forward to was bringing Jude to the cemetery to visit his big sister. It was the only way we could have our babies be together. So on October 5th, it happened. We got to take Jude to Avery's spot. It was a very special, bittersweet moment.

Here's Jude at 9 weeks 3 days, actually just 3 days after his due date. He's "holding" Avery's new pinwheel.

The sun was crazy that day, but here they are... my babies. "Together."

We came back on October 8th to visit again.

Me with my kids. Not the way I planned it.

Daniel with our two babies. He's such a great Daddy to both of them.

I still can't believe it most times that this is our story. When you have a baby, so many people ask "is this your first?" I always tell the truth. "No. He has a big sister who was stillborn last year." Usually something to that effect. I don't care if I make them uncomfortable or if they feel awkward. Avery is still my first baby and she always will be. She is Jude's sister and he will always be her brother. He will grow up knowing about her and loving her as if she was here with us. Jude will know that she's waiting for us in Heaven. We will be with her again someday.

Saturday, October 1, 2011

After the Rainbow

Our Rainbow baby will be 9 weeks old tomorrow, October 2nd. That day is also his due date. Jude Wesley was born on July 31st at just 31 weeks gestation. The same thing that took Avery was beginning to happen to our little boy. He had to be born via emergency c-section and spent four weeks and four days in the NICU. He's been home for just three days shy of how long he was in the hospital. Funny how it goes so much slower in the NICU. He's already getting so big. I wish time could slow down...

So, how is life after the Rainbow? Has our grief over the loss of Avery changed since Jude has been born? I can imagine some people may expect us not to miss Avery anymore, or maybe that everything is fixed now that we have "a real baby." In a lot of ways, Jude makes us miss her even more, experiencing all of the things we mourned losing with her. Finally being able to lose sleep at night to nurture a precious baby, instead of losing sleep because you can't stop crying over your empty aching arms. Oh, and I was right... having to get up all night long to feed and change a crying baby is nothing compared to what I got to do after I had Avery. Being Jude's mom is so much easier than being Avery's mom. It's nice to know I wasn't mistaken. I knew exactly what I was missing with Avery. The challenge of parenting is worth every second and I take on all of it gladly. I cherish it. This is exactly what I wanted, everything I dreamed of. Life is perfect. Well, almost.

You would have to read my latest post in Jude's blog to see why things aren't all they could be. And then you'll know how I feel about the fact that I cannot have anymore children. Avery and Jude are all I get. Yes, I am physically able to conceive, but the risk is too great. I cannot handle another loss and it would be selfish to put my life on the line. But it's not easy to accept. I am not ungrateful for the gift of Jude, but I just didn't expect this to be our life. I just don't think it's fair.

Today, Daniel and I were talking about how we will never experience a daughter. We lost the only one we could ever have. I'll never braid my little girl's hair or dress her up in pretty outfits. I'll never have dolls or Barbies lying around my house. No pink... No little toenails to paint. I won't be able to teach my daughter how to use make-up or listen to her talk about her crushes. I'll never have that amazing mother-daughter relationship that I share with my own mother. After losing Avery, I didn't know I would never get the chance to experience all the girl things with another daughter in the future. I had no idea Avery would never have a sister. Now I feel like that's another form of loss to deal with. As much as I love having a son, there will still be something we missed out on. Something we were supposed to have.

Having another baby after a loss doesn't erase anything. It doesn't replace the baby that died. I really hope people don't believe that. I miss thinking that Avery's death was the only burden I'd have to carry. The Rainbow is supposed to be the end of the storm and I wish that were still so. I am cherishing every second with Jude... every accidental smile, every little preemie grunt, every silly expression, every yawn, every cute sneeze, every breath, every thing... But after he's outgrown each stage, I can never have that back. I can never experience it the next time around with another baby. This is it. I wish losing Avery was enough devastation for one life.

In a way I feel like Avery sort of died in vain, for lack of a better word. I really believed that she died to save the rest of her siblings. That her death taught us what was wrong with my body so we could make my next pregnancies safe and we would find victory over my mutations. Turns out, all the extra difficult intervention only bought us six weeks and we nearly lost Jude the same way we lost Avery. And there won't be anymore siblings to live for her. I always pictured several little ones in our home, alive because of Avery. Enjoying life because of Avery. I know Jude is alive because of Avery... but it almost wasn't a happy ending for him. My body failed to carry a pregnancy to term once again. The one thing I swear I was made for, my body cannot handle. This is a low blow to me, a slap in the face.

I know my heart will begin to heal over this new reality, the loss of my dream of having a big family. I know the time will pass and it will become the new normal, just like life without Avery has become. And one day, we will be able to tell Jude about his big sister and how amazing she is. He will grow up loving her and he'll know that she is in Heaven waiting, saving a special place just for us.

Monday, July 4, 2011

Andy's song for Avery

One of the things I am grateful for through losing Avery is the bond that has been formed between us- those who loved her and still do. Those who miss her and don't let us forget that. One of those people, who has always amazed us with his love for Avery, is her uncle, Andy. Andy is Daniel's younger brother. Even his Honda has the same 'Avery' sticker that mine and Daniel's cars sport. Long after some have stopped mentioning Avery or act as if she's just something of the past, Andy is still here with us, making her feel relevant. It's so touching when others are so obviously affected by our precious little girl. Especially when over a year after she's gone and her brother is on his way, someone could come over to our home just to share a song they wrote about her. That's what Andy did on Thursday night. Just to know that someone thought about her that much, to pen lyrics in their head while they worked hard at their job, to go home and write the music to put those words to, to make a song about our Avery... It's such a gift to us.

Andy is very talented. He always has been. Writing music, singing, playing guitar... It all seems to come so naturally to him. His voice is beautiful and has always been one of my favorites to hear. God has really blessed him with these talents. And he uses them to honor God, which makes it all that much more beautiful. And of course, honoring Avery is beautiful to me as well. When he sat in our living room next to his new wife, singing and playing Avery's song, Daniel was next to me with tears streaming down his face. Daniel may be the older one but there are many times when he looks up to his little brother. I think this was one of those times. So in awe at his brother's heart and how he was sharing the same pain that Daniel bears every day. It was a special moment. I'm so touched and so honored by Andy's gift to us. It's so personal and so special.

I asked Andy if he could email me the lyrics and if I could share them here. So here it is, Andy's song for his little niece:

The news hits me so hard
My brother's baby girl won't make it out alive
This feeling of helplessness overtakes me
I don't know why this happened but I miss you Avery


Mommy and daddy are so proud of you
Even though they missed your first word and step
God knows I believe that you're singing and dancing in His holy presence



We love you so much
We hate to say goodbye
Those tiny hands hold our hearts so tight
Don't you worry we'll hold you soon
But till then don't forget that We love you
We miss you
We wish you were here with us


Even when the waves are crashing down
You're still good
God you're so good


The news hits me so hard
My brother's baby girl won't make it out alive
This feeling of helplessness overtakes me
I don't know why this happened but We miss you Avery


Andy and sweet, tiny Avery.




Thank you, Andy... For being a great brother to us... and a perfect uncle to sweet Avery. <3 We love you.

Monday, June 20, 2011

Fathers Day

Today was Daniel's second Fathers Day. His first came just three months after Avery died. I remember last year that the day was so hard on me. I felt worse for him that day than I had for myself on my first Mothers Day. This year was obviously much more hopeful, with Jude on the way and doing so well. Today also just happened to be the start of my 25th week pregnant. That, as we all know, was the week we lost Avery.

Hitting week 25 feels much better than the weeks leading up to it. Getting here and knowing Jude is still thriving and kicking away calms so many fears. But this week is still an emotional one for so many reasons. Avery's due date is on Wednesday, the 22nd. That's still so sad to me. She should be having her first birthday sometime in the next week or so. But it won't happen. Then of course, today being Fathers Day was hard.

I always worry that people won't acknowledge Daniel as the father that he is. He isn't as publicly vocal about his feelings of Avery and that's just his personality. His thoughts mirror mine and he hurts just like I do. Time has not chased away his love for her or his pain. He even told me today that he felt sad about her and missed her a lot. Fathers Day worsens that sting, just as Mothers Day does for me. But it makes it so much worse when people deny you the day. I felt so upset today, and I catch myself still feeling bothered by it now, when someone close to us wished Daniel a happy "future" fathers day. That comment was followed by "This time next year, you'll be a gleaming father!" It broke my heart. Especially because we love this person and they would never want to hurt us. I just feel so surprised that they wouldn't consider Daniel a part of fathers day after all we have been through. I hate to think that people only consider us as "almost" parents only because I'm pregnant with Jude. I do not get how people could think that way. How is Daniel not a father? That baby we buried? She looked exactly like him.

Why would I have to give birth to a baby if she was just so easily discarded? Why would we have a funeral for someone who doesn't count as a person? Why do we miss someone if she isn't considered our daughter? Our flesh and blood? Why would I tattoo her name on my body to keep with me forever if she is so easily forgotten? How does being pregnant for six months with someone that has a face and a beating heart, laboring and giving birth, burying a baby, and grieving their absence on a daily basis not count for anything? I really hate feeling like I have to justify that we are still parents even before conceiving Jude.

The definition of parenting isn't just limited to taking care of a child for a specific period of time. Sure, typically, you care for your child until they are 18 or so and go off on their own. But what if your child dies at age 10, does that just erase their existence and completely revoke your title as father or mother? Or do they count because they were here for a little while and other people got a chance to know them? So then tell me, how many years need to go by for the life of a person to count? I'm not sure I've come across that time table. If your parents die, that doesn't mean that you never had a mother or father and it doesn't mean you're no longer a son or a daughter. Even parents who give up their babies by choice for adoption at birth and never see them again are still called birth parents... Birth mother, birth father... If getting the chance to raise or take care of a child for a substantial period of time is what makes it count, then what about fathers who are deployed for a large part of their child's life? Do you say that that father isn't a real father because he hasn't even met his child or had the chance to take care of him? Of course not. His child is just not with him.

And so it's the same with us. Our child is not with us. But she lived. And she lives now in Heaven.

I guess I just find it hurtful to go through so much devastation and to love a child so much even in death and then be denied her. It makes me feel like people don't care about her, that they don't consider her a meaningful life or something that matters. I feel like her death is dismissed as nothing more than simply being not pregnant anymore. Why do I have to keep being made to feel like this? How can people that were at her funeral and saw our brokenness and received her photos and watched her get buried just ignore the fact that she was here? It makes me feel so much more sad for her. So sad that she's really made less of an impact than I thought she had. Breaks a mothers heart.

Just a last thought... Some (not all) people with living kids think they have it so much harder than bereaved parents. Please do not make the mistake of assuming that the challenge of raising children is harder than the absence of children due to death. We were in no way "let off the hook" when we lost our children. We grieving parents aren't ignorant enough to think that raising a child is all sunshine and easy street. We don't have this ridiculous fantasy world painted in our minds where we have absolutely no clue what we're missing. We are aware that there is definite stress and hardships involved. But no parent of a living child could ever tell me, even on their most difficult, end-of-their-rope, ripping-their-hair-out day that they would rather trade places with me and have their child be dead and visit a stone in a cemetery instead of snuggle them close or watch them grow up. I'd take infinite stress over devastation any day. It's worth all the challenges and hassles to take care of a child. You don't get anything out of the death of your child. You lose more than you can bear. And the void lasts forever.

So besides that simple comment that caused so much emotion, Daniel had a decent day. I made him feel as special as I could, telling him what a wonderful father he is. It takes such a special man to be the father of a dead child. He has loved both of our children even before they were conceived. Lots of men have trouble bonding even sometime after birth. Not Daniel. He loves both Avery and Jude as if he carried them himself. He never felt Avery kick. He only saw her on three ultrasounds and heard her heartbeat while she was alive. And still he loves her and mourns her just as I do. Already, he is in love with our son. He talks to Jude, touches my belly, marvels at his developments each week and loves to feel him kick. He doesn't need to meet Jude to love him. He already does. I love that about Daniel. Such a beautiful father. Avery and Jude are so blessed to be his.